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(Al.com) Congressional candidate Gary Palmer will skydive for fundraiser Sept. 27
By: admin
In: News
Aug 5, 2014

By Martin J. Reed | mreed@al.com  An article from AL.com BIRMINGHAM, Alabama – Just over a month before the Nov. 4 general election, U.S. congressional Republican candidate Gary Palmer is jumping out of an airplane. Palmer earlier this year said he would join the Sept. 27 skydiving fundraiser to benefit the International Foundation for CDKL5 Research organized by […]

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(AL.com) Gov. Bentley signs Carly’s Law to legalize marijuana-derived CBD oil prescriptions
On: Aug 3, 2014
By: admin
In: News

An article from AL.com MONTGOMERY, Alabama — Gov. Robert Bentley signed a bill Tueday to legalize the use of a marijuana-derived oil, called CBD oil, for medicinal use. The bill, commonly called Carly’s Law in honor of the 3-year-old Carly Chandler of Birmingham, would allow the University of Alabama at Birmingham UAB’s Department of Neurology, […]

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Throw Matt From The Plane
On: Aug 2, 2014
By: admin
In: News

CDKL5 is a rare and severe neurological disorder. There are only 600-700 documented cases of this disorder across the globe. Children with this disorder suffer from treatment resistent epilepsy, Cortical Visual Impairment, Gastrointestinal problems, Austism, apraxia and other major complications. Most children cannot walk, talk or feed themselves. They are dependant on their caregivers for […]

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Sunset Tracking
Mary Scott Hunter will skydive.
On: Aug 2, 2014
By: admin
In: News

Big announcement was made on the Matt Murphy show the morning of July 28. Mary Scott Hunter, State School Board Member (District 8) will be jumping out of a plane with us on Sept 27th to bring awareness to CDKL5!! She has also promised to help raise money so we can get Matt to jump […]

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**All donations made are tax deductible and go directly to the International Foundation for CDKL5 Research